Today (Friday September 27th) after the MRI we were told that a large part of the tumor has died and separated itself from the pons (pontine area) of the brain.  It is like a cyst that has filled with fluid.  They are scheduling brain surgery to remove this.  The rest of the tumor has shrunk and seems to be separating itself from the affected area. 

 What does this all mean?  Well no-one is quite sure as this has never happened before.  The Doctor now says that the tumor may or may not grow back which is huge as they had always said, "it would grow back".  What they are able to see on the MRI has blown everyone away.  This has never happened and it is in uncharted territory.  It appears that while we are not out of the woods by any stretch of the imagination, we may be in the middle of a miracle.

  They are scheduling her surgery next week while we have this window of opportunity to remove the cyst and dead tissue & tumor.    Nobody knows if the tumor has died completely or what is going on.  Since this has never been seen before, the Doctors seem to be in awe. 

They are excited but still very reserved.  It was clear at the meeting we had today they were not trying to get our hopes up, but they seemed quite excited.

 There is still a lot of unknown , and they won't have more information until they do the surgery.  Up until today there was no hope and no possible surgery to help her.

 We still need your prayers,  Please don't stop praying.  We definitely believe all your prayers are working.  From the bottom of our hearts we wish to thank everyone and again ask to keep Karlie on every prayer list and or prayer chain.  I believe we are in the middle of a miracle and one day we will all praise GOD for our miracle child Karlie Breeden.

 Thank you so very much, Jody Powers


October 17th
 
Things are beginning to settle down.  Karlie has gone home from the hospital last weekend.  Earlier than the Doctor wished but Karlie and the family had enough of being in the hospital. So with some arrangements for blood testing etc.  they were able to go home.  Karlie has improved so much since getting home.  She is sitting up and communicating (exceptional well whenever she wants something).  They are still having an issue with her sodium levels.  We had a blood test today.  If all goes well she will go back on her Chemo treatments next week.   We have a ways to go, but with all your prayers we know Karlie will be back to her full self shortly.  Please again I ask that you remember Karlie in all your prayers.  Thank you all for all your love and support.
 
Jody

 

October 8th
 

As some of you may know we had a new MRI a week ago last friday. Upon reviewing the MRI our Doctors were amazed to find that a part of the Tumor had died. The dead part of the tumor along with the rest of the tumor, became incased in a fluid filled cycst. It had found a small space away from the Pontine area and was perfectly sitting there where it could be removed. So last wednesday Dr. Sun performed brain surgery on Karlie and was able to open the Cyst, remove the tumor and fluid and dead tissue. We were facing all kinds of possible problems with a procedure like this. We are now 5 days post the surgery. Karlie has done fantastic. The only side effect from the surgery is her left arm seems to be weak. The same day of the surgery we noticed her eye already began to move back into its normal position. The Doctors say this has never happened before. At the bare minimum they believe they have extended her life for a significate period of time. They believe there could be some cancer cells left in the pontine area, but do not know if there really is or not. Since nothing like this has ever been seen or happened before we are in ground breaking territory. This could even be such a miracle that her life has been saved from this tumor. We will continue with monthly MRI's and will continue with her Chemo as soon as the Dr.'s believe it is safe to begin. We are so grateful for all your prayers. It is clear the prayers are making a huge difference in our Karlies life. Please continue to pray for her complete healing. Again and as always we wish to send you all our deepest thanks for all your love, support and prayers. Without all of your prayers we would have never come this far. All our love,  Jody Powers & the Breeden family.


 
Jody Powers
 

 

October 6th

Last night we had Karlies new MRI to get a visual of how successful the surgery went.  The new MRI shows that there is NO TUMOR.  The Dr. does say there can be some cancer cells left.  They do not know what will happen next.  As soon as it is safe we will begin the Chemo again.  I am still in such shock that we have come this far.  It was Just a few short months ago that we were told that there was no hope.  Karlie would live at most 12 months.  Some of the Doctors thought we should not even attempt the treatments that we did.  Now here we are 5.5 months later and we are making medical history.  I know that it is with the prayers that we all have prayed and Gods grace has brought us this far.  I guess at times I even have a hard time wrapping my thoughts around how far we have come.
 
Karlie has no side effects from the surgery.  All the this and that's they said could happen as a result of the surgery have not come to pass.  She can speak and all her motor skill are perfect. 
 
I again sat with Dr. Sun and reviewed the new MRI last night.  I saw his face and his reaction.  He is in shock as well.  It was clear he was pleased with our results.   As I have said before we will praise God for this miracle and now we are. 
 
Karlie will be going home as soon as she if off the IV Pain relief, and when she can eat.  They removed her catheter last night.  Today we are hoping to be moved out of ICU and into a recovery room.  We should be taking her home in a few days as long as no complications arise.
 
Through this entire process we have been blessed with all your prayers and thoughts.  Your hard work for her fund raisers, and support you all have given to Karlie and the entire family.  I know without all your love, support and prayers, we would have never come this far.  So I know I have said this before but I must say it again.  We thank you and love you all for all the support you all have given us.  Please keep up with all your prayers and God Bless You All.  All my love, Jody


 
Jody Powers
 

October 4th

Thank You !!!!   Thank You for your prayers!!!!!  They are working.  Karlie went through the surgery with flying colors.  The Surgeon was able to remove most of the tumor.  There are still cells existing in the pontine area.  There will be a MRI again tomorrow at 3 pm to see the results of the surgery.  There were no complications, no blood transfusions.  She was off the ventilator within 1/2 hour of her surgery.  At this point no one knows what to expect.  We will continue the Chemo treatments in hopes of killing the remaining cells.   Again we are in uncharted territory so there is no guidelines to know what to expect.  Tomorrow we hope to know if she has any motor skill complications or speech complications.  If she does not she will go home in a week.  If she does we will then begin physical and or speech therapy.  I along with the entire Breeden family again would like to thank everyone for all your prayers.  Without those prayers we would not get through this.  Please keep the prayers coming.  God Bless You All. 
 
 
Love Jody

September 29th

I know I have sent a couple emails with regards to my niece Karlie.  But this one is by far the most exciting and scary. 

 
Today after the MRI we were told that a large part of the tumor has died and seperated itself from the pons (pontine area) of the brain.  It is like a cyst that has filled with fluid.  They are scheduling brain surgery to remove this.  The rest of the tumor has shrunk and seems to be seperating itself from the affected area.  What does this all mean.  Well no-one is quite sure as this has never happened before.  The Doctor now says that the tumor may or may not grow back which is huge as they had always said it Will grow back.  What they are able to see on the MRI has blown everyone away.  This has never happened and it is uncharted territory.  It appears that while we are not out of the woods by any stretch of the imagination, we may be in the middle of a miracle.  They are scheduling her surgery next week while we have this window of opportunity to remove the cyst and dead tissue/tumor.  Nobody knows if the tumor has died completely or what is going on.  Since this has never been seen before all the Doctors seem to be in AH.  They are excited but still very reserved.  It was clear at the meeting we had today they were not trying to get our hopes up, but they themselves seemed quited excited at what they were seeing.   There is still a lot of unknown , and they won't have more information until they do the surgery.  Up until today there was no hope and no possible surgery to help her.  So we still need your prayers,  Please don't stop praying.  We definatley believe all your prayers are working.  From the bottom of our hearts we wish to thank everyone and again ask to keep Karlie on every prayer list and or prayer chain.  I believe we are in the middle of a miracle and one day we will all praise GOD for our miracle child Karlie Breeden.
 
Thank you so very much
 
 
Jody Powers

 

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